Here are a list of links I've found useful and which I refer to all the time.
If there sites you particularly find helpful please let me know and I will add to this list.
BRAIN CANCER
Musella Foundation For Brain Tumor Research & Information
Nonprofit public charity dedicated to helping brain tumour patients through emotional and financial support, education, advocacy and raising money for brain tumour research. There is much on this site, information on clinical trials and noteworthy treatments, brain tumour research and information, personal stories, webinars. The foundation continually updates a comprehensive guide on brain tumours.
Brain Tumour Foundation of Canada
Determined to make the journey with a brain tumour one full of hope and support. There's a lot of useful information and stories on this site of interest to patients, caregivers and brain cancer researchers. Foundation is involved is creating grants for brain cancer studies. Canadian Cancer Society
Brain cancer information.
National Brain Tumor Society
Aim to discover a cure, deliver effective treatments, and advocate for patients and care partners. BC Cancer Headlines Newsletters
Quarterly newsletter from cancer centre in Vancouver and full of stories and information for anyone dealing with brain cancer, from patients and their families to physicians and nurses. Anything related to the brain cancer experience is discussed.
The International Brain Tumour Alliance
Unique global network for the brain cancer community--sign up for free annual magazine and email updates. Organization works with researchers, scientists, clinicians, nurses and allied healthcare professionals.
Pubmed - US Natural Library of Medicine
Links to journal articles/papers on brain cancer.
Nation Cancer Institute
Brain Tumors-Patient version (with link to Health Professional version)
Cancer.Net
Guide to brain tumours. - reviewed by experts in the field. Cancer Research Institute
Immunotherapy for brain cancer
Cancer Research UK
Information based in the UK
End Brain Cancer
Fueling research and clinical trial enrollment
glioblastomamultiforme.it/
Informative information to fight brain cancer (site based in Italy)
Cure Today
For patients with cancer, survivors and their caregivers, providing access to leading resources and information that serve as a guide to every stage of the cancer experience
Glioblastoma Foundation
Transform the standard of care for glioblastoma by supporting the development of drug therapies for glioblastoma.
Cancer Quest
Simple easy to read information on brain cancers
Ivy Brain Tumour Centre
A lot of great information and patient stories.
American Association of Neurological Surgeons
Compresensive list of types of brain tumours
Care2Cure - The Brain Cancer Group
TBCG, based in Australia, aims to drive awareness, share expertise, and increase access to information.
UCLA Health
Brain Tumour Info for Patients
Glioblastoma Support Network
Resources to caregivers of anyone suffering from GBM
Auntie M Brain Tumours Talk Show
Lots of great stuff on this site: Stories, Helpful information, Podcasts...
OTHERS CANCERS & PROGRAMS OF INTEREST
A Fresh Chapter
Explore life beyond cancer. A Fresh Chapter empowers men and women to step beyond the label of cancer patient, survivor or caregiver while giving back to communities at home and abroad.
National Cancer Institute
Comprehensive information on various cancer, research and grants (in US), chat line.
American Cancer Society
Funding and conducting research, sharing expert information, supporting patients, and spreading the word about prevention
Canadian Cancer Society
Information, support, prevention.
All.Can
All.Can is an international multi-stakeholder initiative working to improve the efficiency of cancer care by focusing on what matters to patients.
Pleural Mesothelioma Center
Helping patients and families fight pleural mesothelioma which is a cancerous (malignant) tumour that begins in the pleura (the lining of the lungs).
Mesothelioma Prognosis
Dedicated to helping inform the public about Mesothelioma and assisting patients diagnosed with asbestos illnesses
Cancer.Net
Doctor-Approved Patient Information from ASCO
Cancer Research Institute
Emphasis on Immunotherapy as cancer treatment.
The Recovery Village - Preventing Drug Addiction in Cancer Patients
Dedicated to those with cancer suffering from substance abuse.
Addiction Center
Preventing Drug Addiction In Cancer Patients
SingleCare Medication Management
A guide for patients and caregivers to help successfully manage the storage, dosage, and special circumstances related to cancer medication.
Patient- and Family-Centered Care
PFCC advances the understanding and practice of patient- and family-centered care.
If there sites you particularly find helpful please let me know and I will add to this list.
BRAIN CANCER
Musella Foundation For Brain Tumor Research & Information
Nonprofit public charity dedicated to helping brain tumour patients through emotional and financial support, education, advocacy and raising money for brain tumour research. There is much on this site, information on clinical trials and noteworthy treatments, brain tumour research and information, personal stories, webinars. The foundation continually updates a comprehensive guide on brain tumours.
- Look up clinical trials
- Brain Tumor Guide for the Newly Diagnosed - a guide packed with useful information and survivor stories (my story is on p.278)
Brain Tumour Foundation of Canada
Determined to make the journey with a brain tumour one full of hope and support. There's a lot of useful information and stories on this site of interest to patients, caregivers and brain cancer researchers. Foundation is involved is creating grants for brain cancer studies. Canadian Cancer Society
Brain cancer information.
National Brain Tumor Society
Aim to discover a cure, deliver effective treatments, and advocate for patients and care partners. BC Cancer Headlines Newsletters
Quarterly newsletter from cancer centre in Vancouver and full of stories and information for anyone dealing with brain cancer, from patients and their families to physicians and nurses. Anything related to the brain cancer experience is discussed.
The International Brain Tumour Alliance
Unique global network for the brain cancer community--sign up for free annual magazine and email updates. Organization works with researchers, scientists, clinicians, nurses and allied healthcare professionals.
- Digital copies of the magazine are available also.
Pubmed - US Natural Library of Medicine
Links to journal articles/papers on brain cancer.
Nation Cancer Institute
Brain Tumors-Patient version (with link to Health Professional version)
Cancer.Net
Guide to brain tumours. - reviewed by experts in the field. Cancer Research Institute
Immunotherapy for brain cancer
Cancer Research UK
Information based in the UK
End Brain Cancer
Fueling research and clinical trial enrollment
glioblastomamultiforme.it/
Informative information to fight brain cancer (site based in Italy)
Cure Today
For patients with cancer, survivors and their caregivers, providing access to leading resources and information that serve as a guide to every stage of the cancer experience
Glioblastoma Foundation
Transform the standard of care for glioblastoma by supporting the development of drug therapies for glioblastoma.
Cancer Quest
Simple easy to read information on brain cancers
Ivy Brain Tumour Centre
A lot of great information and patient stories.
American Association of Neurological Surgeons
Compresensive list of types of brain tumours
Care2Cure - The Brain Cancer Group
TBCG, based in Australia, aims to drive awareness, share expertise, and increase access to information.
UCLA Health
Brain Tumour Info for Patients
Glioblastoma Support Network
Resources to caregivers of anyone suffering from GBM
Auntie M Brain Tumours Talk Show
Lots of great stuff on this site: Stories, Helpful information, Podcasts...
OTHERS CANCERS & PROGRAMS OF INTEREST
A Fresh Chapter
Explore life beyond cancer. A Fresh Chapter empowers men and women to step beyond the label of cancer patient, survivor or caregiver while giving back to communities at home and abroad.
National Cancer Institute
Comprehensive information on various cancer, research and grants (in US), chat line.
American Cancer Society
Funding and conducting research, sharing expert information, supporting patients, and spreading the word about prevention
Canadian Cancer Society
Information, support, prevention.
All.Can
All.Can is an international multi-stakeholder initiative working to improve the efficiency of cancer care by focusing on what matters to patients.
Pleural Mesothelioma Center
Helping patients and families fight pleural mesothelioma which is a cancerous (malignant) tumour that begins in the pleura (the lining of the lungs).
Mesothelioma Prognosis
Dedicated to helping inform the public about Mesothelioma and assisting patients diagnosed with asbestos illnesses
Cancer.Net
Doctor-Approved Patient Information from ASCO
Cancer Research Institute
Emphasis on Immunotherapy as cancer treatment.
The Recovery Village - Preventing Drug Addiction in Cancer Patients
Dedicated to those with cancer suffering from substance abuse.
Addiction Center
Preventing Drug Addiction In Cancer Patients
SingleCare Medication Management
A guide for patients and caregivers to help successfully manage the storage, dosage, and special circumstances related to cancer medication.
Patient- and Family-Centered Care
PFCC advances the understanding and practice of patient- and family-centered care.
