YARON S BUTTERFIELD
  • Home
    • My Story
  • About Me...
    • Media... >
      • Stories after diagnosis
      • Cracking the SARS genome
      • Vancouver's First 24hr Internet Cafe
    • Research
    • Art
    • Writing
    • Speaking Engagements
    • Catching the Light
    • Contact
  • Activities...
    • A Fresh Chapter >
      • Peru 2019
      • Kenya 2024
    • The Human Library
    • Brainiacs
    • Brain Tumour Walk/Run
    • The Marathon
    • Sasquatch Hockey Club
    • Talks & Lectures
    • Random Stuff
  • Your Story...
    • Brain Tumour Information Day
    • Ourbraincancerstory
    • Patient/Caregiver
    • Healing
    • Links of interest
    • Your Supplements
    • Book Reviews
  • Merchandise

Your Experience
​

Picture
We want to hear your story. Share your experience-newly diagnosed or long-term survivor, every story is unique and worth sharing. That you can live and enjoy life after diagnosis.

As a cancer researcher and long term brain cancer (GBM) survivor, I'd like to learn more than just how you have been treated by your health care team but also what you are doing yourself to help heal which can then be summarized and shared with others. I'd like to help however possible to help you deal with this beast. We can I have a one-on-one chat, email conversation, or even a skype or facetime chat.

Personal information will not be shared.  One aim as a cancer scientist, is to do a statistical analysis of various groups of data which will be shared here and/or through email. Your information is crucial. Another goal is to inform the brain cancer community on what people are doing in various dimensions to tackle this experience. If you do not wish to receive updates on this and/or new discoveries and treatments, please change  "Do you wish to stay in touch?​" to "No" below.

Important: Required fields show red star beside field name. For all other fields, more detail is preferred but add as much or as little information you are comfortable with. Some field names have a question mark--hover over for more information or instructions.

    Tell us about yourself!

    This further allows for anonymity if your story is published later (with your consent)
    A patient name is preferred but not required
    [object Object]
    Email of person filling out form
    Summarized form will be emailed to you. If you are not interested in minimal follow-up email updates and contact, please click No
    All of above (this section) is confidential and will not be shared with any third party without your permission. Statistical analysis may make use of city/country but nothing tied to personal information.

     Diagnosis and Treatment.

    Format: Month / Year. If month is unknown, just list Year
    If diagnosed with more than one type, choose the more aggressive one.
    Comma separated list.
    Select all that apply
    Do you have any theories for why the cancer appeared? Genetic? Environment?
    There may be overlap but some people relate to one name vs another so go with the one you are familiar with.
    Please add anything else you've tried not listed above and/or add further details
    If you need to take anti-seizure medication, please select. If not in list, fill next form. If you don't know, click "I don't know"
    List any other side effects you may have experienced not listed above
    All of us have challenges after diagnosis; what are some of yours?

    What you did or are doing to heal.

    I believe a number of these played a big role in my healing.
    Comma delimited/separated list.

    Recurrence.

    Recurrence is common in brain cancer in the years following initial treatment, but this does not mean there are no other treatment options.  There are many others who have survived many years after a recurrence. I am one of them--I had a recurrence 1.5 years after initial treatment.
    Drug Trials, Response
    If you have been on any clinical trial, please list name of trial and/or drug
    Supply digit

    Moving Forward.

    Summarize and add to your story...
    Tell us as much of your story as you like...

    Almost Done!

    You can play a role in helping with this effort; if there are things that are important and missing in this form please add to comments box below.​
Submit

Picture
May you continue to heal, thrive, and survive!



​Thank you and Never Give Up!

A candle loses nothing
by lighting another candle.

                                
Father James Keller
Feel free to check out some items available to purchase: Mechandise
​MY STORY
  • Home
    • My Story
  • About Me...
    • Media... >
      • Stories after diagnosis
      • Cracking the SARS genome
      • Vancouver's First 24hr Internet Cafe
    • Research
    • Art
    • Writing
    • Speaking Engagements
    • Catching the Light
    • Contact
  • Activities...
    • A Fresh Chapter >
      • Peru 2019
      • Kenya 2024
    • The Human Library
    • Brainiacs
    • Brain Tumour Walk/Run
    • The Marathon
    • Sasquatch Hockey Club
    • Talks & Lectures
    • Random Stuff
  • Your Story...
    • Brain Tumour Information Day
    • Ourbraincancerstory
    • Patient/Caregiver
    • Healing
    • Links of interest
    • Your Supplements
    • Book Reviews
  • Merchandise